Here it is July 23rd. I’m about halfway between my last scan and my next scan. I had been feeling very confident about my health and 100% did not expect a recurrence anytime soon. But two things have happened to change that:
- Facebook support groups – people say NOT to check them out when you are first diagnosed. They are upsetting and so many people have different, more dire diagnoses. But I can’t stop looking! For one thing, I have read that Prilosec is a terrible medicine to take when you have PNET. And I have been taking 2 a day! So I messaged my doctor and lo and behold…. yes he says… get off the Prilosec. Use tums only. I wouldn’t have know that if I hadn’t read about that in the support group. So part of me wants to hide my head in the sand but the other part of me needs to be proactive with my diagnosis.
- I feel like a weakling – I wonder if I’m supposed to be stronger at this point? I try not to dwell on this, but with the least bit exertion, my legs are quivering! And on top of that, it seems like I can feel tumors in my liver and pancreas. I am really hoping that this is totally in my head.
One thing I have learned is from the last sentence of a poem that was recently sent to me:
“You have 2 lives. The second one begins when you realize you only have 1”.
I am living for each day and cherishing my time with my family and friends. My grandchildren are truly the light of my life. I love them SO much and I tell them that every time I see them! 💙💕💙💙
